‘My liver is being rejected’: Milford woman hopes to raise awareness about organ donations

February 10, 2019
By

“Many people see a transplant as a cure, but the truth is it really is only a treatment for many and we must not forget this.”

Lucinda Roberts, from Milford, has had liver cirrhosis, an incurable autoimmune disease, since she was a teenager.

Her condition means she is unable to drink alcohol, get life insurance or have children.

The 34-year-old received a liver transplant in August 2017 after nine months on the waiting list. However, recent tests have shown that her body is now rejecting the transplant.

She said: “It is a terribly scary word.

“Everyone thinks a transplant is a cure, but it’s not. It’s a treatment and there’s no guarantee that it will work.

“You appreciate your moments and your days, but you live life on a slight edge.”


Miss Roberts has been given more medication and will undergo tests to see if the new liver can be saved.

She said she may need to be put back on the liver transplant waiting list, but this would be “worst case scenario”.

“It is terribly scary.

“There are going to be hundreds of people in this country who are going through the same thing.

“You don’t know how long it’s going to last and many need more than one transplant in their lifetime,” she said.

The average waiting time for a liver transplant in the UK is 135 days for adults and 73 days for children, according to the NHS website.

Miss Roberts explained that the transplant needs to be from someone who is reasonably healthy, with a similar build and of the same blood group.

Read More

Lucinda Roberts’s story on living with liver disease

She is now waiting to hear whether she will need a biopsy.

She said: “In the way that I look at life, I’m a big believer in positive thinking. People that have autoimmune diseases tend to be healthier if they are positive.

“When I was told it was being rejected, I didn’t rush out to look at the symptoms because I think if you fixate on these things, it can make it happen.

“The new liver is very new and young and it all depends on whether you can you trick the disease into thinking it’s fine.”

Miss Roberts’ goal is to raise awareness about organ donations and increase the level of education in schools as she believes it will save lives.

Lucinda is writing children’s books about organ donations and transplants in the hope of educating children at a younger age
(Image: Surrey Live / Darren Pepe)

She is also writing children’s books about organ donations and transplants in the hope of educating children at a younger age and generating more conversation about the topic.

She said: “I think the most important thing for other people to know is that if anyone else is going through the rejection of an organ, they’re not alone.

“I really want to get people talking about organ donations. One person can save up to eight other lives.

“If you or someone you loved needed an organ transplant, would you accept one? If you say yes, then would you consider donating?”

To find out more about donating, visit the NHS website here.

Article source: https://www.getsurrey.co.uk/news/surrey-news/my-liver-being-rejected-milford-15807836


Famous Words of Inspiration...

Tags:

Leave a Reply

Your email address will not be published. Required fields are marked *